8 Considerations to Make When Providing Dementia Care for LGBTQ+ Individuals
Caring for LGBTQ+ individuals with dementia presents unique challenges and considerations due to the intersection of their sexual orientation, gender identity, and cognitive decline.
Here are eight important considerations to make when providing dementia care for LGBTQ+ individuals:
1. Cultural Competence: Care organisations and healthcare providers should receive training on LGBTQ+ cultural competency to understand the specific needs and concerns of the LGBTQ+ community who are living with a dementia. This can help create a more inclusive and supportive care environment.
2. Respect for Identity: Our identity is unique to us; it makes us who we are and gives us the sense of individuality. It is essential to respect and affirm the individual's sexual orientation and gender identity throughout the care process. Using preferred names, pronouns, and terminology is crucial for maintaining the person's dignity and sense of self.
3. Support Networks: Individuals from the LGBTQ+ community who are living with a dementia may have unique support networks, including chosen families and LGBTQ+ community resources. Caregivers should try to involve these support systems in the care process to provide holistic support.
4. Legal and Financial Planning: LGBTQ+ individuals may face unique legal challenges related to their relationship status, inheritance rights, and healthcare decision-making. It is important to address these legal and financial aspects early on to ensure the person's wishes are respected as their condition progresses.
5. Social Isolation: Individuals from the LGBTQ+ community who are living with a dementia may be more vulnerable to social isolation due to historical discrimination, stigma, and lack of family support. Caregivers should continue to prioritise and provide social opportunities and connections that are affirming and inclusive.
6. Healthcare Discrimination: LGBTQ+ individuals may have faced discrimination in healthcare settings, which can influence their trust in healthcare providers. Caregivers should be mindful of providing affirming and non-judgmental care to build trust and ensure the person receives appropriate medical treatment.
7. Care placements: When considering care, whether this be domiciliary, in a hospital setting or within a care home, caregivers should inquire about the facility's LGBTQ+ inclusivity policies and staff training. Choosing care that is welcoming and affirming can greatly enhance the person's quality of life.
8. Advance Directives: LGBTQ+ individuals (especially those living with a dementia) should be encouraged to create advance directives that specify their healthcare preferences, including end-of-life care and power of attorney. This ensures that their wishes are honoured even if they are unable to communicate them later.
By addressing these considerations and providing LGBTQ+-inclusive dementia care, caregivers and healthcare providers can better support the unique needs and experiences of LGBTQ+ individuals living with dementia.
Written by Miki Max Fagerli-Schmidt and David Wilson-Wynne